As some of you may know John had a feeding tube put in today. It is called a G tube and goes directly into his stomach. We can feed him regular food but it has to be blended into mostly liquid. We also have a formula that can be given to him. The plus side to this has many things. First, he does not have to eat to meet his daily calorie intake. Second , this will help him gain weight back since we are down between 15 and 20 pounds. Third all of his medicine can be given through this tube including pills. We have to crush the pills and add water to put it through the tube. That makes it easier for all of us since there will be no more arguing about meds. And finally he will not have to have the nasal tube hanging across his face! That is very important for a 9 year old!
The surgery went well but he has been very cranky the whole night. He is getting lots of pain meds to keep him comfortable but it hurts the most when he has to get up . It hurts when he takes a deep breath or tries to sit up. Overall he has been very strong through the whole thing. Tomorrow we get to learn how to do the feedings on our own and hopefully get to go home before the end of the weekend.