Just an update

I know we don't get on here much but we usually post when there are changes or treatments. So last week we did get to go home Wednesday night. It was late but at least John got to sleep in his own bed. We continued to give his anti nausea medicine but by thursday night he still ended up being sick. We have been lucky that with enough meds the vomiting is only a few days . It doesn't last all day but we never know when it is going to happen. He could be fine and then 5 minutes later he is sick. We have been vomit free since Sunday!! Some people might think its gross to talk about but it is part of our reality.

Yesterday (Monday) he had another dose of chemo. This one doesn't seem to make him sick so at least he gets a break for the rest of the week. Next week is another 5 day treatment which takes about 3-4 hours each day. He also has an echocardiogram on Friday to make sure that his heart is strong enough for the next 48 hour chemo session. The combination of chemo drugs for the 48 hour are medicines that can damage his heart or weaken it. So every 2 or 3 sessions the need to make sure it is functioning properly. Also when he has next weeks chemo he also has to be attached to "his backpack" which is a bag that he carries around with his saline bag and pump for 24 hours a day for a week. This is the round of chemo that can damage his bladder so each day he gets a bag of saline with meds added and then each one after that is just normal fluid. He hates being hooked up constantly and having to pee constantly. Who wouldn't though.

We also had a followup appointment with his radiation doctor and that went well. He believes that his hair should all grow back (after our entire treatment is finished) and that his eye function is almost back to normal. He still has some double vision when looking to the far right. We are scheduled to start radiation on his lungs in about 2 months but the will do a CT scan before then to see how the tumors are responding. We saw a significant improvement from the first 6 weeks of treatment so hopefully it will only get better.

We had a nice night outside in the shade tonight. We put blankets on the lawn and looked at saltwater fish online. We are getting a small saltwater tank that my brother is no longer using. John loves the ocean and all the fish and things that live in it. It will be great for him to have something to help with relaxation. He has recently told me that he wants to be a marine biologist. Of course the kids took a bunch of silly pictures on the computer so I thought I would share a few of those.

They were having such a great time being crazy. We even talked about camping out in the yard since John cant really travel anywhere. We are trying to find different ways to do the things he loves. Tents and sleeping bags and a fire pit for smores! How much fun would that be!!

Hope you all are well and please leave a comment if you have any questions or even an idea of stuff we can do at home so that the kids can have an enjoyable summer. Thank You.